Child Death Review Case Reporting System Data Use Agreement

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Appendix E NCRPCD Data Dissemination Policy & Guidelines for Requesting De -identified Dataset DATA DISSEMINATION POLICY Mission The purpose of the Child Death Review (CDR) Case Reporting System of the National Center for the Review and Prevention of Child Deaths (NCRPCD) is to systematically collect, analyze, and report on information surrounding deaths of individual children around the country. The information can then be used at the local, state, and national levels to inform improvement in child health and safety and to prevent deaths. The data collected with the System includes the following: • information about the child, family, supervisor and perpetrator; • the types of action taken during the investigation; • the scene, incident, and background information on the cause of death, including the risk and protective factors; • the services provided or needed as a result of the death; • a description of the teams' recommendations, as well as the policies, practices, and other actions taken to prevent other child deaths; and • factors affecting the quality of the case review. The web -based CDR Case Reporting System (CDR -CRS) was first implemented in May 2004 in 14 pilot states. Version 1 was made available for widespread use in January 2007; Version 2 was released in January 2008; and Version 3 was issued in October 2013. Updated information on the number of participating states, number of entered cases and number of cases migrated into the system from older state reporting systems is available from NCRPCD. The CDR -CRS is supported primarily by the HRSA Maternal and Child Health Bureaus and secondarily by the US Centers for Disease Control and Prevention. Data submitted by states resides on servers at the Michigan Public Health Institute (MPHI). Data Sources Data collected by the CDR -CRS are the result of multi -disciplinary processes that bring together state and/or community agencies to share information on child death events and to identify the risk factors in these deaths. Data entered into the System may include, but are not limited to, information gathered from the following data sources: birth certificates, death certificates, law enforcement records, medical records, autopsy reports, child protective services reports, and Emergency Medical Services run reports. I Grant No. 1 U49 MC 00225-11-00 from the Maternal and Child Health Bureau (Title V, Social Security Act), Health Resources and Services Administration, Department of Health and Human Services. 2 Number 200-2012-M-51198 from the US Centers for Disease Control and Prevention. 13