Child Death Review Case Reporting System Data Use Agreement

Home Browse Search

6. Neither the dataset nor any part of it will be released to any persons other than those identified in the approved Application for Data. 7. Investigators and all other researchers with access to the dataset will not attempt nor permit others to attempt to use the dataset to learn the identity of any decedent. If the identity of a decedent should be inadvertently discovered, Investigators will make no use of this knowledge, nor will they permit others to use the knowledge. Investigators will inform NCRPCD of the discovery so it can prevent future discoveries. Investigators will not inform anyone else of the discovery of identity. 8. Investigators understand that not all deaths of children in the states have been reviewed by child death review teams and that not every child death review team in the country participates in the CDR Case Reporting System. 9. Investigators understand that data will only be reported at an aggregated level and no data will be released that identifies data by state jurisdiction without explicit state permission. Aggregated data must have cell counts of six or more cases in order to be reported. 10. Investigators will not alter the approved research design without written permission from NCRPCD. 11. All oral and written presentations or other distribution of information resulting from the use of this dataset shall be developed with adequate provision for the accuracy, reliability and integrity of the data. 12. All oral and written presentations or other distribution of information resulting from the use of the requested dataset will be submitted to the NCRPCD for review at least two weeks prior to presentation or submission to a journal or other source of publication. 13. All oral and written presentations or other distribution of information resulting from use of the requested dataset will include an acknowledgement of the participating states and NCRPCD. 14. All presentations and publications will include the following language: "This dataset was provided by the NCRPCD, which is funded in part by Grant Number U49MC00225 from the U.S. Department of Health and Human Services (HHS), Health Resources and Services Administration (HRSA) and in part by the US Centers for Disease Control and Prevention Division of Reproductive Health. The contents are solely the responsibility of the authors and do not necessarily represent the official views of NCRPCD, HHS or the participating states. The following states contributed data from their child death review (list states)." 15. All presentations and publications making use of this dataset shall be provided to NCRPCD in a timely manner so that it is a repository of the various uses of the data. 26